Lori, thank you for making this a beautiful site for people in our group or others to write on. May I share my journey tomorrow, a long day, a good day it's been. Always praying for a cure and soon!
Lori, it's fantastic! MS is like a rollercoaster, never know what symptoms will pop up. I'm doing well right now but who knows what tomorrow holds for any of us with MS. Your web site is a great idea!
I will share my trials and wins at another time. I'll be back!
"I'll be Back" that's funny. yes one step at a time,
PASS THOIS SITE ON.
Living with MS 37 years now, knowing about MS since 8 years old, I am predisposed to MS. Never thinking it would play a part in my life. Diagnosed early, my disease course ran rampant, paralyzed from neck down in 3 months. At this time there were no DMD, I over came in time and lived a full life. This support group is one of my legacies, I've advocated all my life for MS Awareness. 2 years ago I had an over night exacerbation, In today's world, even though there is no cure, there are many things now available to slow your disease progression. Keep in contact with your Neurologist, eat well, exercise and stay positive...all key factors in living life well with MS.
Ok, here goes...probably had MS in my late 20's but the doctors said it was all in my head. My husband believed me but there was nothing we could do, the main symptom was extreme fatigue. I sort of had a remission for 20 years, then some more symptoms developed (nasty ones), at age 50 MS hit full force, on my birthday, that was 11 years ago. Started meds, I got very sick every week 1-4 days, did ok to work though. Then had surgery 3 years ago (had to stop meds for a couple of weeks and felt so good off Avonex that I did not do the shot for several months); that did it, I lost most sight in left eye, lost most use of right side (I'm right handed), had to use a walker, a cane and a wheelchair frequently. Stopped driving, crocheting, write my name or anything else. Could not wash my own hair for a while or get fully dressed alone. However, I'm lucky, I have a wonderful husband of 37 years. My doctor had me change to Gilenya and Ampyra. I slowly regained use of my right side and could do things for myself. Most people do not know what all went on with me. Then about a year ago I was normal (well, as normal as MS lets you be), I just started to drive within 2 miles from the house (we live in the country so very little traffic), I'm sewing again, a lot, and can clean my house, do the laundry and dishes without help. I used to ride, am getting ready to get on my horse this spring (weather permitting). Life is good right now but I have to remember that I still have MS and have to take it easy and not overdue. Oh, yes, we have 2 grandbabies (1 and 2 1/2) who need their MaMaw, they and momma & daddy are moving out to our property soon and I'll get to be a bigger part of their lives. Can't, won't let MS take "ME" away again, if I can help it. I think Gilenya and Ampyra saved me.
HOW ARE YOU? when you have time
Would you help me get this out so others can share there stories
maybe something funny, oh I'm not drunk..or the Dr ..........
I found another great site....
I want to make a new category for "caregivers" to add their thoughts
even their health issues, will be out till Sunday
My name is Lori Lanzl. I was diagnosed with MS in 1990. I've created this site so I can help educate the public about this disease, help raise funds for MS research, and share the journey with my MS family.